My story is a rather rare one. I first got sick when I was 10. For 8 years I searched to be diagnosed and treated. In April of 2016 I was diagnosed with Dysautonomia. Dysautonomia is an 'umbrella term' for diseases and disorders caused by a destroyed autonomic nervous system. In my case, my disorder is known as POTS. POTS stands for Postural Orthostatic Tachycardia Syndrome. In simple terms, it means that my autonomic nervous system signals between my brain and heart, signalling to pump blood around my body, is destroyed. This causes my blood to pool in my legs instead of having it pumped around to all my organs, tissue and veins! Having this disorder has heavily disabled my quality of life in many aspects for many years; that was until I started my life enhancing treatment!
I am currently 1 of 12 people in Canada (only one in Saskatchewan!) on a trial Albumin infusion therapy. Every 3-4 days I am pumped with 500 ml of 5% Albumin (a protein found in blood plasma), and 500 ml of Saline. This is done through a power port in my chest at my local hospital, and I spend 4 hours getting each treatment done! I have been on treatment since April 18, 2016, and today (May 8, 2017), I completed my 110th round of infusion therapy!
To say these treatments changed my life would be an understatement. Being sick for all of my teenage years was difficult because I wasn't able to be a 'normal' kid like everyone else. Because of these treatments, I am able to travel, work, go to school, follow my passions, and I am able to be something other (better) than the "sick kid".
To all the donors who don't know if it's worth it, I hope you come across my story and find your reason why. Because of you, donors, I have a huge part of my life back. I get to be myself. I get a second chance at life. There are not enough thank-you's, hugs, and words I can share to express my eternal gratitude.
And to all those people who aren't donors because they don't have the push they need to do it, I hope you read my story and it pushes you to get out there, share some, and give people like me a chance of a brand new life.
A more detailed look into my diagnosis and health journey can be found at: